Monday, April 16, 2012

Wow.... I just don't know what else to say.

http://gma.yahoo.com/k-e-diet-brides-using-feeding-tubes-rapidly-080053646--abc-news-health.html

The above link is to a story on Yahoo News concerning women (particularly brides-to-be) getting NG-tubes inserted into their noses as a form of weight loss in preparation for their upcoming wedding. There was also a segment with Kathy Lee Gifford and Hoda. I am absolutely shocked and appalled at the total lack of disregard for those who use a feeding tube to save their lives. As a parent of a child with a feeding tube, I have defending my son and my parenting numerous times. I can't tell you how many people think it is simply for convenience or out of laziness and bad parenting. I can't describe the looks we get from people or how it makes us feel to see them point and stare as they whisper. If it wasn't for Eli's feeding tube, I can't imagine what his quality of life would be like right now... or if he would even be alive without it.

To see these stories about women doing this because of their own vanity.... I just can't even find the words. It's like many other mothers have said, "Thanks for making it even more difficult to justify our children having feeding tubes." This is NOT a weight loss tactic. This is not for convenience. This is to SAVE OUR CHILDREN'S LIVES! This is how they get nourishment and medication.

To joke about a bride having to carry around a bag with formula pr worry about getting it pulled out during their sleep; these are real concerns! Every time Eli whimpers in his sleep or cries out in pain, we rush in to make sure that his tube hasn't been jerked out or it's not wrapped around his neck (which is often the case). You worry about getting the phone call from day care that his button was ripped out while playing. You worry about the constant threat of infection due to basically an open port into his stomach. How dare these brides make this life-saving choice for our children into something that truly is about laziness and convenience. They should be ashamed of themselves.

This is a picture of Eli the day he received his Tubie Friend. It is a bear, made just for him, with a matching feeding tube. Eli saw it and said, "Oh! His belly is just like me!"

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