This is just a quick little note to update everyone on the process of Eli's trip to Baylor.
At the evaluation, it was recommended that Eli have another Endoscopy and Biopsy done to test for EE (Eosinophilic Esophagitis) (http://www.eosinophilicesophagitishome.org/). We've been calling every day for the past several weeks to see if Eli's GI doctor had received the needed paperwork from Baylor to schedule this procedure. Currently, Baylor does not have a pediatric GI doctor on staff, so getting all the information together to send to the doctor here in Lubbock has taken quite a while.
Well, yesterday, I FINALLY received the phone call I've been waiting for!!! The GI doctor's nurse called to tell us that they had received the paperwork and were ready to schedule! So Eli has a consultation scheduled for Tuesday, June 5 to discuss the procedure and have a pre-op check-up. Then we will go to the hospital at 6:30 am the next day, Wednesday, June 6 to have the Endoscopy and biopsies done.
Depending on the results of the biopsies (and lots of hoping that Eli does NOT have EE) we will be able to make further plans of checking in to the inpatient program at Baylor. At this point, we are thinking it will be August before we are able to go, as it may be too late to start in June and all the July slots are currently full. But, we're getting there!!! We do just ask that you please continue to keep Eli in your prayers during his procedure. It's never an easy thing to see your little child being put under anesthesia... or to have them wake up from it so scared. Please pray for comfort for him and patience for me!
On one final note, I'd like to remind everyone about the fundraising we are working on. Information for "chances", as well as for the Golf Scramble are discussed in a previous blog. We truly appreciate all the kind words of encouragement, prayers and donations that have been sent our way. Thank you all SO much for thinking of our little guy!
No comments:
Post a Comment